New Med

Exam is just over...finally...but it was oni mid-term...haihzz
just came back from hosp after a 2 day 2 nite admission...
went 2 hv an infusion of a kind of new med called Rituximab
1st dose need 2 b infused at the ward...cuz the docs r afraid tat there will b allergies..
serious allergies...like LOW Blood pressure, rashes on the body..unusual body heat, rapid heart beatin n so on...
bcuz after tryin so many other kinds of med...my health condition has not really been improved
so hv 2 try this 1..

Thanks Mr Rashidi, the social worker 4 gettin the fund of RM25000 for me...really..THANK U SO MUCH !!!
the other RM5000 i need 2 pay myself...
this is oni the 1st course....5 more courses 2 go...GAMBATEH !!!

Kidsss

Kids r really CUTE, FUNNY

B-U-T sumtimes really GIK SEI u....hahaha

went 2 teach a bunch of kids hip-hop bout a month ago...longer than tat i guess

Ann's bro n frenz....

i dunno whether the dance i taught fits the word " hip-hop"...haha

but nway....it was a primary school students' performance...cant expect so much ,rite ?

this bunch of kids r quite gd ...mayb it was my prob 4 teachin SHITTY dance ...lol

sorry..kids...

All of US

Wat the kids did

Wat the teacher did..SWT

Practisin...

Restin...

Vincent(i guess its spelled this way)sayin HI...n its ann's bro (brandon)

Looks blur....guess wat they were doin...playin MUSICAL CHAIR

P/s: Lookin at them...i feel myself growin older...i guess u guys think the same way...haha...i m thinkin WHEN i was 12 yrs old...although i m just 19,still young, i really cant imagine how it will b when i grow really OLD....with wrinkles all on my face...haha

Vegetarian

I m now a vegetarian
I m practisin this eatin habit 2 improve my health n oso 2 "clean" my body
so hsin n cy...no more BAK KUT TEH with both of u...LOL....
nway, i will b practisin this 4 another 3 more months...

i go 2 ann's place quite often recently bcuz there is a great vegetarian cafe ....
sorry ann...u hv 2 accompany me 2 take vegetarian meals....LOL

Its located at Desa Sri Hartamas...named MG's cafe...
i had a cream sauce spaghetti tat day.....quite nice...
tell u wat...the soybean balls really taste like meatballs...
the cream sauce which is yellow in colour...i guess its made without addin in milk...i m wonderin how it gets the creamy taste...

Just y'day...i had this vegetarian chop rice....really nice man...the " meat " n the sauce of cuz...

Ann ordered this...vegetarian steak....OMG..its so crispy n tastes so much like meat....it was served 2gether with the healthy bread - charcoal bread...

Look...isnt this meat ??? NO..its definitely NOT....but looks 90% like meat...n tastes 90% like meat .....it even posseses the TEXTURE of meat....

This iced green tea latte is not bad..i guess its the top seller there...





Check this OUT !!!

After the yummy vegetarian meal....v went 2 a boutique called F Block ...just nearby the cafe...at Desa Sri Hartamas...

50% OFF for ALL items
blouses,dresses,pants , shoes


I bought a skirt n a pair of short pants....they cost ONLY RM38

I LOVE this colour damn much....

Ivan

Ivan...my best male fren i guess...my primary school fren....LOL

studyin in UK...Sterling...

i hv posted a small gift n a self-made card 4 his bday as well as a letter ( confession letter ??..LOL)

but i think he hasnt even received them...nvm..i know this takes time....lousy system...

this guy is really nice...listen 2 me tellin my prob...show funny faces...intro a bunch of nice frenz 2 me...wrote notes 4 me 2 study 4 my exam...( n the ques came out ...LOL)

I will really go visit him IF i can afford...haha

He sent me sum pics months ago....NOT so recent pic now...LOL

this is the clearest pic i guess...the guy in front...like shitting....hahhaha

Hooray...he is comin bck 2 Msia...on 22nd June...

OMG...i just cant wait 2 c him man...miss him so much...in fact, i always tell him tat...haha

i m thinkin whether i shud skip my class 2 go 2 the airport...LOL

nway...v n sum frenz hv planned 2 go 2 A Famosa in July ...It is goin 2 b so FUN !!!

College AGN !!!

haihzz...after 2 wks of sem break...2 b exact...just 1 wk la..cuz i spent the 1st wk at the hosp...
I HV TO GO 2 COLL AGN....
haihzz...dun feel like goin act...still not in study mode...LOL
but wat 2 do ??? HV TO !!!
my really close frenz all left...sadddd....:'(
all goin 4 degree ady....of cuz i do hv sum frenz in coll...but then our classes r slightly diff...
now i hv no idea who 2 hang out with durin my breaks...haha...

Went shoppin with Ann on wed....OMG...damn SYOK...bought watever i 1ed....
i bought few tops...1 formal pants...1 school bag...1 handbag....1 purse...a pair of slippers...mascara....concealer...wat else ?? i think tats all...
Had sushizzzz.....my fav...
Act i had just bought a pair of sandals and a pair of heels last wk...
haha....spent quite a lot this month....
but then there r still sum stuffs tat i need 2 buy...mayb next wk ....LOL

I found this in Facebook- Derrick Hoong
http://www.facebook.com/home.php#/note.php?note_id=178111810206&ref=nf

This is wat he wrote...
爱情 并不是那么美丽
如果你不爱一个人
请放手
好让别人有机会爱她
如果你爱的人放弃了你
请放开自己
好让自己有机会爱别人
有的东西你再喜欢也不会属于你的
有的东西你再留念也注定要放弃的...

i think its really TRUE...but then sumtimes v r just not able 2 gv up easily...haihzzz...
Things DID happen...n v need time 2 allow the memories 2 fade...the feelin 2 fade...
this is FATE...n its our destiny....

L-I-F-E

一般人都不愿意让别人看见自己脆弱的一面
当然,我也不例外
总是会忍着眼泪...

痛是什么 ?
身体上的痛 心灵上的痛 我都太习惯了
已忘了什么是痛 忘了什么是眼泪
现在的我开始觉得麻木了

一直生病 真的不好受
浪费了很多时间 错过了很多时刻
忍痛了多少次 但却不能放弃
越来越频密了 有婉转的余地吗 ?

Health Prob

GOD..HELP !!!
i just had a 1 wk trip at the hosp...i got admitted right after my last exam pp...
missed the chance 2 go 4 the gatherin with ywen...sad... :'(

i tot i would b OK after hvin the treatment 8 months ago...( when i missed my final exam cuz i was admitted 2 the hosp)
but then doc said...they c no improvement in my blood n urine results ...
so they asked me 2 REDO everythin...

i transfused Methyl Prednisolone...a kind of steroid...
in fact, i take steroid everyday 2 suppress my immune system ...
( 4 ur info, my sickness ( SLE ) is smth like my own cells attackin one another , so my immune system cannot b 2 strong..otherwise...i will get relapsed)
n now...they r attackin my kidneys...my kidneys r leakin act...means protein comin out ...like kidneys not functionin well...if i dun do treatment asap...will later lead 2 kidney failure = TRAGEDY
my body is a bit swollen...i need 2 take med 2 help me 2 get rid of xtra water inside my body

Later..i had plasmapheresis..
its smth like dialysis....
Plasmapheresis is the removal,treatment, and return of components of blood plasma from blood circulation.
During plasmapheresis, blood is initially taken out of the body through the needle or previously implanted catheter.
Catherer is a tube tat is act inserted into ur body ...with 2 smaller tubes hangin ...
it was act implanted on my thigh ...wat can i say bout it ? DAMN PAINFUL
4 the implantation..i oni felt painful when the doc injected the anesthetic...n i didnt really feel anythin when he inserted the tube

this is my 3rd time doin this...but this is the 1st time i saw the tube...OMG...i tot it was just small like needle...NO... the tube implanted was like a wire with length of a long ruler n circumference of a pencil...it looked quite disgustin i hv 2 say....
n it was REALLY REALLY PAINFUL when the nurse cleaned the part 4 me...2 prevent infection...
btw...i transfused a pack of blood oso....due to low blood count...
it took 3 days 4 plasmapheresis...n OMG...a new doc helped me 2 take out the catherer...
i was really scared...i was afraid tat it would b so painful man...i got so HOT...
then really ....it was truly painful...but the doc was nice...summore adjusted the position so tat i wouldnt feel so painful

In plasma xchange, the removed plasma is discarded and the patient receives replacement donor plasma, albumin or saline with added proteins...
n the 1 i need is ALBUMIN... my albumin level is really really LOW....

Then, i transfused a very exp med called IVIG....this is the 3rd time i transfused this IVIG ...normally they gv u after the plasmapheresis..its part of the treatment...

Guess how much this IVIG costs ..............RM9000 smth
1st time i didnt pay 4 it...it was FREE
2nd time...i had 2 pay on my own...
this time....the social worker was very nice...helped me 2 apply so that i oni need 2 pay 10% of the price which is RM900 smth...

There comes the last part of the treatment....n its a SUPER EXPENSIVE med called Rituximab
i hv 2 hv 6 courses...once 1 wk continuously...
1 course costs RM5000....means altogether RM30000
they r act referin 2 the social welfare...but not sure they will get the approval....so v might need 2 pay on my own...cuz ...its quite urgent..
chance of gettin recovered ( oni 4 the kidney part n not my sickness) = 70%
but i found this in wikipedia..." a small no of patients with SLE hv died in the context of being treated with Rituximab "....
i dunno y...i feel like cryin when i c this...i m afraid tat smth bad will happen...
In fact...i cried...
although i know the doc will b supervisin this...sumtimes things r just not like wat u expect...

All these ( gettin admitted 2 hosp, takin med, seein doc, gettin sick ) hv act occupied quite a part of my life...
it had been so many times tat my hols r reserved 4 admission 2 the hosp...o gettin sick...

i wonder whether my life is oni 4 studies n gettin sick...
tats y now..i really dun care so much ady...

U WILL NVR KNOW IF U WILL STILL BE HERE 2MR....
sO JUST DO WATEVER U 1 2 DO ....

i wanna go play..i will go...
i wanna hv fun...i will hv...
i wanna go shoppin...i will go...
but of cuz studies r still the most important 1...surely i will still work hard 4 tat
i just dun wanna waste my life...esp my youth life...i wanna b like any1 else out there oso...
i dun 1 2 b SPECIAL ...

To frenz,
Tq...guys 4 always supportin me...both emotionally n physically...WAT R FRENZ 4 ???
being with u guys...i really feel relaxed n happy....in fact, i dun pretend 2 b happy...i really feel happy when i m with u all...no need 2 FAN...LOVE U ALL !!!